Detailed Mechanism Funding and Narrative

Years of mechanism: 2008 2009

Details for Mechanism ID: 3475
Country/Region: Namibia
Year: 2009
Main Partner: Pact, Inc.
Main Partner Program: NA
Organizational Type: Private Contractor
Funding Agency: USAID
Total Funding: $619,763

Funding for Care: Adult Care and Support (HBHC): $173,094

PUBLIC HEALTH EVALUATION FOR PALLIATIVE CARE IN NAMIBIA (PHE tracking # = NA.09.0252)

A review of palliative care provision in sub-Saharan Africa in 2005 found a wealth of experience but a lack

of evidence, and that a priority for the field should be a focused evaluation focus to: (1) capture lessons

learned, (2) prove the effectiveness of facilities, and (3) move forward on expansion of quality palliative care

with maximum coverage (Harding & Higginson 2005). This lack of evidence, and lack of documented

lessons learned, hampers informed priority setting and decision making on the part of national and

subnational programs, and of local service providers.

Although palliative care improves some outcomes for those living with HIV disease (Harding et al 2005), the

evidence base is largely absent in Africa. A survey of end-of-life HIV care providers in Africa has identified

the reasons for this absence of evidence. African practitioners reported the need for the skills and tools to

evaluate and audit palliative care (Harding et al 2003).

With funding from PEPFAR, two public health evaluations (PHE) of palliative care in Kenya and Uganda

were commenced in 2007 and both are set to be completed by the end of 2008. The evaluation design

consists of an observational longitudinal evaluation of existing care, and focuses on the outcomes of

palliative care. An additional cost analysis component will also compare outcomes with their associated

costs.

The African Palliative Care Association (APCA) is proposing that a similar public health evaluation be

undertaken in Namibia. This evaluation will follow on from the rapid situational analysis of palliative care that

was undertaken by the MoHSS in conjunction with APCA in 2008, and the results of this situational

analysis will also be taken into account when finalising the protocol for the Namibia public health evaluation.

The findings from this public health evaluation are intended to inform practical guidelines for scaling up

palliative care provision in Namibia and making mid-course corrections for the programme.

The specific aims of this Palliative Care PHE are as follows:

• To evaluate how program components and costs are related to health outcomes

• To disseminate "lessons learned", best practices and to provide recommendations for scale-up and mid-

course corrections identified from the evaluation

PHEs are undertaken in order to understand rapidly the effectiveness of programs of interest to countries,

so that mid-course corrections and adjustments can be appropriately applied based on the study's findings.

We envisage that the multiple data sources could be used to guide future care by providing information on

the following:

- detailed description of the processes and outputs of care provided cross-sectionally and over time by

home based care providers providing palliative care, including methods of working, assessment systems,

drugs provided, methods of detection and management of opportunistic infections, symptoms and

psychological problems, nutrition, primary prevention, family care, measurement methods and continuity,

follow-up and defaulting rates;

- detailed description of the outcomes and impacts of care achieved over time by palliative care service

providers, including change in symptoms and symptom relief, change in quality of life, health status and

psychological needs, and family support;

- linkage of input and components of care, cost, process, outcome and impact data to determine which

models of care provide optimal outcomes for whom and in what circumstances;

- suggestions to guide the optimal future investment in palliative care, utilising integration of outcome and

qualitative data to examine associations between components of care and patient clinical and non-clinical

outcomes;

- The purpose of capturing costs associated with different care models and their outcomes is to estimate,

compare and evaluate their strategic value within the overall study. Costs are a critical component of any

PHE because they inform resource-allocation decisions during the initiation, scale-up, and maturation of

sites providing palliative care.

New/Continuing Activity: New Activity

Continuing Activity:

Emphasis Areas

Human Capacity Development

Public Health Evaluation

Estimated amount of funding that is planned for Public Health Evaluation $173,094

Food and Nutrition: Policy, Tools, and Service Delivery

Food and Nutrition: Commodities

Economic Strengthening

Education

Water

Table 3.3.08:

Funding for Care: Adult Care and Support (HBHC): $379,669

NEW/REPLACEMENT NARRATIVE

The African Palliative Care Association (APCA) is dedicated to applying lessons learned from other African

countries to scale-up cost-effective, culturally-appropriate palliative care for Namibian persons living with

HIV/AIDS (PLWHA) and their families. This continuation from FY 2007 AND 2008 COP relates to other

Basic Care services: USAID, MOHSS, I-TECH and PACT grantee links.

Palliative care technical expertise in Namibia is increasing and has expanded beyond the cancer center to

doctors, nurses and community volunteers through palliative care training provided in COP 2006 and COP

2007. The development and expansion of palliative care has been limited by the lack of expertise to support

not only provision of palliative care but efforts to advance programs. In COP 2006 and 2007, the USG and

its partners, including the Ministry of Health and Human Services (MoHSS) received technical assistance

from APCA and its members. This included support for the Catholic AIDS Action (CAA) community and

home-based care (CHBC) program to pilot a program to integrate key palliative care strategies and training

into their efforts within Anamulenge & Rehebooth. Sensitization of the MoHSS, other key stakeholders and

USG care and treatment partners about the palliative approach to HIV/AIDS care and effective bi-directional

referrals has also been carried out. Initial work has begun in conjunction with I-TECH to review the

Namibian adaptation of the IMAI palliative care module, along with I-TECHS HIV/AIDS modules for the

University of Namibia School of Nursing. Integration of palliative care into pre-service curricula is key and

APCA will work alongside training schools to introduce palliative care and integrate into their curriculum.

The long-term education strategy for palliative care in Namibia is to build in-country expertise that can be

used in trainings and for supervision and mentorship, thus APCA plans to support selected healthcare

workers to pursue specialist training in palliative care. Mobilization for Namibian leadership in palliative care

training, service delivery and policy development has been key through the initial development of a National

Task Force for Palliative Care and the later establishment of a Namibian Palliative Care Association.

While significant program accomplishments are underway, continued technical support is needed to build

on program successes, address existing gaps and develop dedicated in-country expertise. In FY 2009

COP, APCA will support the MoHSS, USG partners and other stakeholders to roll out HIV-related palliative

care services, including continued support for the national Integrated Management of Adult Illnesses (IMAI)

palliative care program and the development and piloting of a national palliative care training program for in-

service training, training of trainers (ToT) and supportive supervision. In 2009, the IMAI palliative care

module will be completed and implementation will begin in selected health centers and clinics. APCA will

support the MoHSS and ITECH with implementation through ongoing review of training materials and

essential drug lists, and technical assistance with the current policy environment for ensuring availability

and accessibility of essential palliative care drugs. While initial work during COP 2007 resulted in palliative

care being included in the national policy on HIV/AIDS, APCA will advocate and support the MoHSS in the

development of further palliative care policies and guidelines; the development and implementation of

standards of care; monitoring and evaluation of palliative care and movement towards the development of a

national palliative care policy that allows nurses to prescribe narcotics and other symptom-relieving

medications. Technical assistance will follow for nurse training and the possible integration of this topic into

the University of Namibia's Advanced Nursing Diploma. Building on successes to date of APCAs Regional

Drug Availability Workshops in Entebbe (2006) and Accra (2007), APCA works with the National Palliative

Care Task Force to ensure Namibian follow-through on the work plan that was developed by Namibian

stakeholders at the drug availability meeting in Windhoek in February 2008.

During COP 2007 APCA supported the National Palliative Care Task Force and the MoHSS to develop a

detailed plan for palliative care leadership and integration at policy, service delivery and education/training

levels. This was informed through a study tour for key MoHSS and NGO personnel to share lessons learned

and best practices across Africa. In FY 2009 COP APCA will support the development of a functional

national palliative care association out of the task force, with clear terms of reference, strategic plan and

work plan. APCA will also support key personnel from Namibia to attend their regional palliative care

conference to be held in Namibia in September 2010.

The CAA/APCA pilot program to integrate palliative care into select sites in the CAA home-based care

program was completed in COP 2007 and lessons learned along with implementation challenges are being

disseminated. In FY 2009 COP, this program will be expanded to additional sites selected in partnership

with the MoHSS and CAA. APCA will train a further 20 health care professionals to receive ToT in palliative

care and also directly train up to 180 community volunteers. APCA will also provide refresher training and

on-going support and mentorship for persons previously trained. APCA will ensure gender-sensitive

approaches, including equitable training and support of male and female health care workers with the goal

of equitable access to HIV/AIDS services for PLWHA and their families throughout USG-supported

programs. APCA will also build upon its programs in other countries looking at men as caregivers for

PLWHA and will integrate the lessons learned into its program in Namibia.

The USG supports a tremendous range of palliative care activities in Namibia. Some palliative care is

provided by partners and sub-partners under the "palliative care" program areas; other palliative care is

provided by partners in other program areas, such as prevention, counseling and testing, and HIV

treatment. Care-related activities extend from clinical interventions focused on the patient (e.g. infection

prophylaxis and pain management) to psychological, spiritual and social care interventions for the patient

and the patient's family. More information is needed on the range, levels and quality of activities being

supported. In FY 2006/2007 APCA conducted a palliative care public health evaluation (PHE) in Kenya and

Uganda. During COP 2008, lessons learned from this PHE were disseminated and applied to the Namibian

context. APCA will conduct a similar PHE in Namibia and a separate PHE in COP 09 form has been

submitted. The results will build upon the situational analysis undertaken with the MoHSS in FY 2007/8 and

will help develop: 1) an inventory of palliative care activities in Namibia; 2) a practical framework for

categorizing these activities including the levels of palliative care provided; 3) a set of process indicators

that can be used to evaluate the quantity, quality and levels of palliative care provided; 4) a model that

estimates the demand for and supply of palliative care by select palliative care partners in a specified

geographic area including an appraisal on implementation of elements of the preventive care package, and

Activity Narrative: strategies that support treatment adherence and management of symptoms and pain. The results will be

used to inform program planning by the Namibian Government, expand palliative care service delivery in

underserved areas, and identify priorities for monitoring and evaluation. The results will also help APCA

support the MoHSS to develop a framework for palliative care monitoring and evaluation for Namibia and

APCA will provide technical assistance in developing tools for ongoing monitoring and evaluation of

palliative care. This activity will be undertaken in consultation with the MoHSS.

APCA will also undertake an assessment of priorities and preferences in end-of-life care in Namibia. This

will be part of a larger multi-country assessment that APCA is undertaking across the region to identify

priorities and preferences for end-of-life care. To date it has been assumed that individuals would prefer to

die at home, yet they are often rushed into the clinic at the last minute. This assessment will seek to

ascertain priorities and will help to shape the overall policy development for palliative care and training

within Namibia and the region.

Throughout FY 2009 COP the work of APCA in Namibia will be coordinated by an in-country project

coordinator with the support of an administrator and technical support and supervision from the Southern

Africa Regional Office under the direction of the Southern Africa Regional Coordinator. Oversight of the

program will remain with the APCA head office and other APCA staff will provide technical assistance as

required.

New/Continuing Activity: Continuing Activity

Continuing Activity: 16183

Continued Associated Activity Information

Activity Activity ID USG Agency Prime Partner Mechanism Mechanism ID Mechanism Planned Funds

System ID System ID

16183 4797.08 U.S. Agency for Pact, Inc. 7372 3475.08 South Africa- $471,669

International Regional

Development Associate Award

8043 4797.07 U.S. Agency for Pact, Inc. 4672 3475.07 South Africa- $293,373

International Regional

Development Associate Award

4797 4797.06 U.S. Agency for Pact, Inc. 3475 3475.06 South Africa- $203,051

International Regional

Development Associate Award

Emphasis Areas

Human Capacity Development

Estimated amount of funding that is planned for Human Capacity Development $206,669

Public Health Evaluation

Estimated amount of funding that is planned for Public Health Evaluation $0

Food and Nutrition: Policy, Tools, and Service Delivery

Food and Nutrition: Commodities

Economic Strengthening

Education

Water

Table 3.3.08:

Funding for Care: Pediatric Care and Support (PDCS): $67,000

NEW/REPLACEMENT NARRATIVE

The African Palliative Care Association (APCA) is dedicated to applying lessons learned from other African

countries to scale-up cost-effective, culturally-appropriate palliative care for Namibian persons living with

HIV/AIDS (PLWHA) and their families. This continuation from FY 2007 and 2008 COP relates to other Basic

Care services: USAID, MOHSS, I-TECH and PACT grantee links.

Palliative care technical expertise in Namibia is increasing and has expanded beyond the cancer centre to

doctors, nurses and community volunteers through palliative care training provided in COP 2006 and COP

2007. The development and expansion of palliative has been limited by the lack of expertise to support not

only provision of palliative care but efforts to advance programs. In COP 2006/2007, the USG and its

partners, including the Ministry of Health and Human Services (MoHSS) received technical assistance from

APCA and its members. This included support for the Catholic AIDS Action (CAA) community and home-

based care (CHBC) program to pilot a program to integrate key palliative care strategies and training into

their efforts within Anamulenge & Rehebooth. Sensitization of the MoHSS, other key stakeholders and USG

care and treatment partners about the palliative approach to HIV/AIDS care and effective bi-directional

referrals has also been carried out. Initial work has begun in conjunction with I-TECH to review the

Namibian adaptation of the IMAI palliative care module, along with I-TECHS HIV/AIDS modules for the

University of Namibia School of Nursing. Mobilization for Namibian leadership in palliative care training,

service delivery and policy development has been key through the initial development of a National Task

Force for Palliative Care and the later establishment of a Namibian Palliative Care Association.

While significant program accomplishments are underway, continued technical support is needed to build

on program successes, address existing gaps, including that of pediatric palliative care, and develop

dedicated in-country expertise. In FY 2009 COP, APCA will support the MoHSS, USG partners and other

stakeholders in the development and piloting of a national palliative care training program for in-service

training, training of trainers (ToT) and supportive supervision, which includes pediatric palliative care. In

2008, this palliative care module will be completed and implementation will begin in selected health centers

and clinics. APCA will support the MoHSS and ITECH with implementation through ongoing review of

training materials and essential drug lists, and technical assistance with the current policy environment for

ensuring availability and accessibility of essential palliative care drugs for both adults and children. While

initial work during FY 2006 resulted in palliative care being included in the national policy on HIV/AIDS,

APCA will advocate and support the MoHSS in the development of further palliative care policies and

guidelines which include those for children; the development and implementation of standards of care;

monitoring and evaluation of palliative care provision for adults and children and movement towards the

development of a national palliative care policy that allows nurses to prescribe narcotics and other symptom

-relieving medications.

During FY 2007 COP, APCA supported the National Palliative Care Task Force and the MoHSS to develop

a detailed plan for palliative care leadership and integration at policy, service delivery and education/training

levels. This was informed through a study tour for key MoHSS and NGO personnel to share lessons learned

and best practices across Africa. In FY 2008 COP APCA will support the development of a functional

national palliative care association out of the task force, with clear terms of reference, strategic plan and

work plan which includes an emphasis on pediatric palliative care. APCA will also be running a pediatric

palliative care track at their conference in 2010 and will support key personnel from Namibia to take part in

this.

It is anticipated that the Namibian palliative care PHE will highlight some of the needs of children requiring

palliative care. Thus the results will be used to inform program planning by the Namibian Government,

expand palliative care service delivery for children, and identify priorities for monitoring and evaluation. The

results will also help APCA support the MoHSS to develop a framework for palliative care monitoring and

evaluation for Namibia and APCA will provide technical assistance in the developing tools for ongoing

monitoring and evaluation of palliative care such as the APCA African Pediatric Palliative Outcome Scale.

This activity will be undertaken in consultation with the MoHSS.

Throughout FY 2009 COP, the work of APCA in Namibia will be coordinated by an in-country project

coordinator with the support of an administrator, and technical support and supervision from the Southern

Africa Regional Office under the direction of the Southern Africa Regional Coordinator. Overall oversight of

the program will remain with APCA head office and other APCA staff will provide technical assistance as

required.

New/Continuing Activity: Continuing Activity

Continuing Activity: 16183

Continued Associated Activity Information

Activity Activity ID USG Agency Prime Partner Mechanism Mechanism ID Mechanism Planned Funds

System ID System ID

16183 4797.08 U.S. Agency for Pact, Inc. 7372 3475.08 South Africa- $471,669

International Regional

Development Associate Award

8043 4797.07 U.S. Agency for Pact, Inc. 4672 3475.07 South Africa- $293,373

International Regional

Development Associate Award

4797 4797.06 U.S. Agency for Pact, Inc. 3475 3475.06 South Africa- $203,051

International Regional

Development Associate Award

Emphasis Areas

Human Capacity Development

Estimated amount of funding that is planned for Human Capacity Development $67,000

Public Health Evaluation

Food and Nutrition: Policy, Tools, and Service Delivery

Food and Nutrition: Commodities

Economic Strengthening

Education

Water

Table 3.3.10:

Cross Cutting Budget Categories and Known Amounts Total: $446,763
Public Health Evaluation $173,094
Human Resources for Health $206,669
Public Health Evaluation $0
Human Resources for Health $67,000